My GlomCon

Privacy policy

This policy applies to you, the user of this website, and GlomCon, the owner and provider of this website. 

This policy applies to our use of data collected about your use of the website and any services or systems within it.

1. Definitions and Interpretation

In this policy, the following terms have the following meanings:

"Account": means collectively the personal information, payment information, and credentials used by users to access material or any communications system on the website;

"Content": means any text, graphics, images, audio, video, software, data compilations, and any other form of information capable of being stored in a computer that appears on or forms part of this website;

"Cookie": means a small text file placed on your computer by GlomCon when you visit certain parts of this website. This allows us to identify recurring visitors and analyze their browsing habits within the website.

"Data": means collectively all information you submit to the website. This includes, but is not limited to, Account details and information submitted using any of our services;

"GlomCon": means Glomerular Disease Study and Trial Consortium;

"Service": means collectively any online facilities, tools, services, or information that GlomCon makes available through the website either now or in the future, including any online communications infrastructure that GlomCon makes available through the website now or in the future. This includes, but is not limited to, web-based email, message boards, live chat facilities, and email links;

"User" / "Users": means any third party that accesses the website and is not employed by GlomCon and acting in the course of their employment; and

"Website": means the website that you are currently using (my.glomcon.org) and any sub-domains of this site (e.g., pubs.glomcon.org or edu.glomcon.org) unless expressly excluded by their terms and conditions.

2. Data Collected

Without limitation, third-party vendors or GlomCon may collect any of the following Data:

2.1 name;

2.2 date of birth;

2.3 job title & profession;

2.4 contact information such as email addresses and telephone numbers;

2.5 demographic information such as postcode, preferences, and interests;

2.6 financial information such as credit/debit card numbers;

2.7 IP address (automatically collected);

2.8 web browser type and version (automatically collected);

2.9 operating system (automatically collected);

2.10 a list of URLs starting with a referring site, your activity on this Web Site, and the site you exit to (automatically collected); and

2.11 Cookie information (see Clause 10 below).

3. Our Use of Data

3.1 GlomCon will retain any personal data you submit for as long as you use the Services and Systems provided on the website. Data you may submit through any communications system we provide may be retained for an extended period of up to one year.

3.2 Unless we are obliged or permitted by law to do so, and subject to Clause 4, GlomCon will not disclose your data to third parties. This includes our affiliates or other companies within our group.

3.3 All personal data is stored securely following the Data Protection Act 1998. For more details on security, see Clause 9 below.

3.4 Any or all of the above data may be required by us from time to time to provide you with the best possible service and experience when using our website. Specifically, we may use your data for the following reasons:

3.4.1 internal record keeping;

3.4.2 improvement of our products/services;

3.4.3 transmission by email of promotional materials that may be of interest to you;

3.4.4 contact for market research purposes may be done using email, telephone, fax, or mail. GlomCon may use such information to customize or update the website.

4. Third-party Website and Services

GlomCon may, from time to time, employ the services of other parties for dealing with matters that may include, but are not limited to, payment handling, delivery of purchased items, search engine facilities, advertising, and marketing. The providers of such services do not have access to specific personal data provided by users of this website. Any data such parties use is used only to the extent required to perform the services that GlomCon requests. Any use for other purposes is strictly prohibited. Furthermore, any data processed by third parties must be processed within the terms of this policy and by the Data Protection Act 1998.

5. Changes in Business Ownership and Control

5.1 GlomCon may, from time to time, expand or reduce its business, which may involve the sale of certain divisions or the transfer of control of certain divisions to other parties. 

Data provided by users will, where it is relevant to any division so transferred, be transferred along with that division, and the new owner or newly controlling party will, under the terms of this policy, be permitted to use the Data for the purposes for which you supplied it.

6. Controlling Access to your data

6.1 Wherever you are required to submit data, you will be given options to restrict your use of that data. This may include the following:

6.1.1 use of data for direct marketing purposes; and

6.1.2 sharing Data with third parties.

7. Your Right to Withhold Information

7.1 You may access certain areas of the website without providing any data at all. However, to use all Services and Systems available on the Web Site, you may be required to submit account information or other data.

7.2 You may restrict your internet browser's use of Cookies. For more information, see Clause 10 below.

8. Accessing your own data

8.1 You may access your account anytime to view or amend the data. You may need to modify or update your data if your circumstances change. 

8.2 You have the right to ask for a copy of your data on payment of a small fee.

9. Security

Data security is of great importance to GlomCon. To protect your data, we have established suitable electronic and managerial procedures to safeguard and secure data collected online.

10. Changes to this policy

GlomCon reserves the right to change this Privacy Policy as we deem necessary from time to time or as may be required by law. GlomCon will immediately post any changes on the website. 

11. Contacting Us

If you have any questions regarding this privacy policy, contact us at [email protected].